Publications List and Order Form: Contact a Family - for families with disabled children: information on rare syndromes and disorders

photo of a disabled child with a family member

Contact a Family staff and a sample of our publications We keep parents and professionals informed through a range of newsletters, factsheets, booklets and research reports. Some items are available on this website and they are listed in the navigator on the left of this page.

We publish 'The Contact a Family Directory: The essential guide to medical conditions, disabilities and support' in hard copy and on our website. This is a unique resource containing information on over 1,200 conditions and rare disorders, with details of associated support groups. More information is available in our promotional flyer (0.2Mb) which is in Adobe Acrobat pdf format. Most of the information is also published on this website.

Each of our nation, region and London offices also publishes their own regular newsletter, sent to several thousand readers in each area.

Our Parents and Paediaticians Together project also publishes a number of leaflets and guides.

Contact a Family staff and a sample of our publications Other items may be purchased via The Contact a Family shop which has a secure credit card facility. Alternatively, all items can be ordered using the Order Form (0.1MB) which is in Adobe Acrobat pdf format. Please print out this form and send it, together with payment to Contact a Family, 209-211 City Road, London EC1V 1JN. Goods can only be dispatched on receipt of payment.

'Without that Contact a Family brochure, I wouldn't have been able to contact half the places I have done. It was brilliant - I was at a dead end, didn't know which way to turn. They advised me on who to go to, what to do next, paths I didn't know I could go down.'
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This Web Site © Copyright, Contact a Family 2007.
Although great care has been taken in the compilation and preparation of this work to ensure accuracy, Contact a Family cannot accept responsibility for any errors or omissions. Any medical information is provided for education/information purposes. It should be noted that most information written about specific disorders includes the most severe scenario. Many individual cases may not display all the features mentioned and the degree of severity of the features that are displayed may vary a great deal between individual cases. You should obtain further information from your medical practitioner. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites. Please refer to our detailed Legal page for more information.
Contact a Family, 209-211 City Road, London EC1V 1JN Tel: (020) 7608 8700.
Registered Charity No. 284912. Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769. VAT Reg. No. GB 749 3846 82.