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Idiopathic and Familial Pulmonary Arterial Hypertension
Background
Formerly Primary Pulmonary Hypertension
Hypertension is the medical term for an abnormally high blood pressure. Idiopathic and familial pulmonary arterial hypertension (IPAH and FPAH) are a rare progressive disorder in which blood pressure in the lungs rises far above normal levels. They may affect individuals at any age, including new born babies and infants of either gender, and all races and ethnic origins. Most commonly, however, IPAH and FPAH affect women in their thirties, forties and fifties.
The National Commissioning Group has designated a pulmonary hypertension service. Services are based at: Hammersmith Hospital, London; Royal Free Hospital, London; Royal Brompton Hospital, London; Papworth Hospital, Cambridge; Freeman Hospital, Newcastle-upon-Tyne; and Royal Hallamshire Hospital, Sheffield. A separate service for Scotland is designated at Gartnavel Hospital, Glasgow. The UK service for children is provided by Great Ormond Street Hospital for Children with outreach clinics across the country.
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