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Ehlers-Danlos syndrome
Is there support?
PO Box 337
Aldershot
GU12 6WZ
Tel: 01252 690940
e-mail: info@ehlers-danlos.org
Web: http://www.ehlers-danlos.org
The Group is a National Registered Charity No. 1014641, established in 1988. It offers individual support by phone, letter and e-mail and attempts to link members for mutual support where possible. It maintains a list of specialists with particular interest in and experience of the condition. It publishes a six monthly newsletter for members and has a wide range of information available, details on request.
Group details last confirmed October 2007.
Inheritance patterns and prenatal diagnosis
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