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Craniofacial Conditions
Is there support?
128 Beesmoor Road
Frampton Cotterell
Bristol BS36 2JP
Tel: 01454 850557
e-mail: info@headlines.org.uk
Web: http://www.headlines.org.uk
Originally, established in 1993 as the Craniofacial Support Group, the Group is a National Registered Charity No. 1058461 established by Contact a Family working with parents of affected children. It acts as an umbrella group for all the conditions associated with Craniosynostosis, many of which are individually listed in the index. Headlines has a full list of conditions coming under the Craniosynostosis umbrella that have been checked and approved by medical experts. It offers contact with other families with the same or similar condition where possible and has information and advice about the practical aspects of hospital visits and surgery. For UK residents, it can offer help and guidance in being referred to one of the four designated Craniofacial units. It publishes a newsletter 'Headlines' and has information available, details on request. The Group is in touch with over 1,000 people including professional workers, overseas members and over 500 families.
Group details last confirmed November 2007.
Inheritance patterns and prenatal diagnosis
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