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Chromosome Disorders
Is there support?
PO Box 2189
Caterham
CR3 5GN
Tel/Fax: 01883 330766 (answerphone 24 hours)
e-mail: info@rarechromo.org
Web: http://www.rarechromo.org
The Group is a National Registered Charity No. 1110661, established in 1984. It offers contact with families with an affected member who has the same rare chromosome disorder or who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified leaflets on various rare chromosome disorders. There is a network of local contacts and Unique promotes awareness of rare chromosome disorders to the public and professional workers. It co-ordinates families to assist in research and has a password-protected discussion forum on the website for registered members. It publishes a newsletter three times a year and has information available, details on request. The Group has nearly 6,000 affected families and many professional workers as members worldwide.
Group details last updated April 2008.
Inheritance patterns and prenatal diagnosis
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