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Cardiomyopathies
Is there support?
Unit 10
Chiltern Court
Asheridge Road
Chesham
HP5 2PX
Tel: 01494 791224
Tel: 0800 018 1024 Helpline
Fax: 01494 797199
e-mail: info@cardiomyopathy.org
Web: http://www.cardiomyopathy.org
The Association is a National Registered Charity No. 803262, established in 1989. It offers: advice and information for individuals and families; linking families where possible; raising awareness among doctors, nurses, health professionals, educational institutions and the general public; and a regional contact network. It publishes a quarterly newsletter and has a wide range of information available, details on request. The Association has approximately 2,000 members.
Group details last confirmed March 2008.
Further support for young people with Hypertrophic Cardiomyopathy is available from CRY - Cardiac Risk in the Young (see entry, Heart Defects)
Support for bereaved families of adults who have died as a result of Cardiomyopathy is provided by the Sudden Adult Death Trust (SADS UK) (see entry, Heart Defects)
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