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Bladder Exstrophy
Is there support?
8 Burnbray Avenue
Burnage
Manchester
M19 1DA
Tel: 0161 443 3174
e-mail: karen@bees-group.co.uk
Web: http://www.bees-group.co.uk
BEES is a National Registered Charity No. 1045218, established 1992. It offers support by telephone and letter, raising awareness about the condition and advice and information on incontinence. It publishes a bi-annual newsletter and has information available, details on request. Please send an SAE. Every two years BEES pays for families to attend a family weekend away at Centreparcs at various locations around the UK. This event is only offered to members. BEES is in touch with the families of 250 affected children and 100 professional workers.
Group details last updated June 2007.
Central Manchester and Manchester Children's Hospitals
Tel: 0161 922 2051
e-mail: janet.fishwick@cmmc.nhs.uk
Web: http://www.bladderexstrophy.co.uk
Bladder Exstrophy Family Association is a web based group set up by medical professionals at the Central Manchester and Manchester Children's Hospitals, with the input of parents, in 2007. The emphasis of this group is the provision of quality medical information and represents the views and services available at the Central Manchester and Manchester Children's Hospitals. A moderated forum is available on their website.
Group details last updated June 2008.
Inheritance patterns and prenatal diagnosis
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