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Beckwith-Wiedemann syndrome
Is there support?
The Drum and Monkey
Hazelbury Bryan
Sturminster Newton
DT10 2EE
Tel: 07889 211000 (mobile - day)
Tel: 01258 817573 (evenings)
e-mail: rbaker5165@aol.com
Web: http://www.bws-support.org.uk
This is a small support group started in 1988. It offers support by telephone and letter. Activities include co-operation with researchers at Birmingham University and Great Ormond Street Hospital. It publishes an occasional newsletter and has information available, details on request. The Group has nearly 200 members.
Group details last confirmed July 2008.
Inheritnace patterns and prenatal diagnosis
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Pounds for parents
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