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Batten disease
Is there support?
c/o Heather House
Heather Drive
Tadley
RG26 4QR
Tel: 0115 965 4815
e-mail: BDFA.info@binternet.com
Web: http://www.bdfa-uk.org.uk
THE BDFA (National Registered Charity No. 1084908) was formed in 1998 and its main aim is that no family will go through the devastating journey of Batten Disease alone. They are a supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease.
Group details last updated October 2007.
Inheritance patterns and prenatal diagnosis
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Pounds for parents
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