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Barth Syndrome
Is there support?
c/o Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 01794 518785
Fax: 0870 706 6360
e-mail: info@barthsyndrome.org.uk
Web: http://www.barthsyndrome.org.uk
The Trust is a National Registered Charity No. 1100835, established in 2003 to provide information and support families. It aims to raise awareness about Barth syndrome amongst health professionals and to raise funds to support research. Health professionals are welcome to contact the Trust for information. The Trust maintains strong links with world-class experts involved in treating this disorder. It also works closely with affiliated support groups around the world.
Group details last confirmed May 2008.
Inheritance patterns and prenatal diagnosis
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